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SYMPOSIUM THEME
Hemoglobin S - Making an Evolutionary Perfected Process, Imperfect 

Journal of Sickle Cell Disease and Hemoglobinoopathies
SYMPOSIUM ABSTRACTS

Meeting Location:

Greater Ft. Lauderdale Convention Center
1950 Eisenhower Blvd, Fort Lauderdale, Florida, USA  33316
April 28 - 30, 2017 
Website:  fscdr.org
Email:  symposium@fscdr.org
Is this a CME Medical Meeting?  Yes
 
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Saturday, April 29 • 10:15am - 12:15pm
Social Media, A Resource for SCD Support, Education and Research

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Charles Jonassaint, PhD, Assistant Professor, University of Pittsburgh
What are they talking about? Sickle cell community presence on social media

Cassandra Trimnell, Executive Director & Founder, Sickle Cell 101
How Sickle Cell 101 supports the SCD community via social media

Keith Quirolo, MD, Medical Director, Sickle Cell 101
Ask Dr. Q: a medical information resource for patients with SCD via social media

Aisha L. Walker, PhD, MPH, Research Assistant Professor, University of Pittsburgh
Using social media to identify patient-oriented barriers to sickle cell therapies

Keyang Zheng, Graduate Student, University of Pittsburgh
Shared deliberation in Facebook support groups for sickle cell patients and caregivers         

Q&A and Group Discussion


Moderators
avatar for Charles Jonassiant, Ph.D., MHS

Charles Jonassiant, Ph.D., MHS

Assistant Professor of Medicine, University of Pittsburgh
Dr. Charles Jonassaint is a practicing clinical health psychologist with an MHS in cardiovascular epidemiology focusing on behavioral medicine and health services research. He has clinical expertise in chronic disease self-management and cognitive behavioral therapy intervention... Read More →
avatar for Alisha L. Walker, Ph.D., MPH

Alisha L. Walker, Ph.D., MPH

Research Assistant Professor, University of Pittsburgh.
Dr. Walker is a Research Assistant Professor and Sickle Cell Scholar in the Vascular Medicine Institute at University of Pittsburgh. She received her PhD in Cell Biology and Anatomy from Augusta University in Augusta, GA (formerly known as Medical College of Georgia). She conducted her postdoctoral training at St. Jude... Read More →

Speakers
avatar for Keith Quirolo, M.D.

Keith Quirolo, M.D.

Dr. Quirolo is an expert in sickle cell disease and thalassemia who was formally the Director of the Pediatric Sickle Cell Program and the Apheresis Program at UCSF Benioff’s Children’s Hospital Oakland. As a recently retired pediatrician he has made himself available to answer your toughest sickle cell related... Read More →
avatar for Cassandra Trimnell

Cassandra Trimnell

President & Founder, Sickle Cell 101
As founder and executive director of Sickle Cell 101, Cassandra is an active educator and advocate within the sickle cell community. Her passion for sickle cell stems directly from her living with sickle cell disease, hgb SS. Cassandra received a B.A. in Global Studies: Social, P... Read More →
avatar for Keyang Zheng

Keyang Zheng

Keyang Zheng is a Graduate student at the Information Science program at the School of Computing and Information. Under supervision of Dr. Rosta Farzan, he has been conducting research on developing computational methods to increase our understanding of the dynamics of online health support groups and how members of such group influence and get influenced by each other. Keyang is a dedicated researcher aiming to continue his doctoral degree in the field of Social Computing and Information Sciences. | Dr... Read More →



Saturday April 29, 2017 10:15am - 12:15pm
209/210 Prefunction 2nd Floor